Colt's Story

Colt was born in September 2010. Quickly after Colt was born they realized something wasn't right... Hours later they diagnosed Colt with Complex Hypoplastic Right Heart Syndrome. He was sent to Children's Hospital Denver where on day 5 he had open heart and a shunt was placed to allow him to grow for awhile. The original thought from Doctor's was that Colt would need a fontane procedure. After months of growth Colt had the chance to grow things on his own and he did to an extent. Doctors told his parents that by 9 months of age his shunt would most likely be too small and the Glenn Procedure would be needed. The fontane had been ruled out as Colt was able to use his right ventricle a little more.

Colt's parents were very happy with the treatment his Doctors from the area had been giving him, but wanted to look further. They had their Cardiologist send out several letters to other hospitals... In the end Children's Hospital Boston replied and said they had seen a similar case and wanted to take a look. Colt traveled to Boston, and on June 20th he went in for testing and on June 21st he had open heart surgery. The surgeon did an invasive set of fixes to the right side of his heart with a bi-ventricular repair. During surgery they repaired several "holes", the tricuspid valve, pulmonary artery, and removal of the shunt. He did very well through his recovery and sent him home to Colorado on June 30th! He is now being watched closely by his Doctors to make sure that the right side has the proper functions and is able to push blood through both ventricles on it's own. He will still need several adjustments, but spirits are high he will be able to use his whole heart to pump blood! Colt is a blessing to have around us and we love him more than anything!